You know, I have to admit, that I’ve never done a blog like this. I’ve never really been the “Share with the Web world” kind of person. Granted, if there was a question that someone had about me, I’d gladly answer it. I figure, if they are going to ask, I can be kind and answer in return. Besides, I’ve lived a life worth of a bestselling novel.
36 years ago I burst about this world. I was pretty much a normal baby, crying for attention, wanting to be burped, etc. However, I was born, with a broken leg. I was born with a bone disease known as Neurofibromatosis. It caused an abnormality in the development of some of my bones. Some examples, I no bone structure behind my right eye, which makes it appear smaller and swollen. I was also born with a left leg that was shorter than the right one.
And there is where my life story lays. My left leg, an appendage that has seen its share of surgeries. The first coming when I was a mere 18 days old. I would be in a cast from that time, until I turned four years old. During that time, I had a surgery that involved my left leg being hooked up to an electrical machine that was supposed to stimulate growth. It pretty much only stimulated the growth of the electric bill. There was also the time I had a bone taken from my right leg, and inserted into my left leg. They hoped that this would in turn spur growth in my leg. Alas, it did not. It didn’t though.
Now, it was during this time that I was in a double cast. From the waist on down, I was in the cast, with a bar going across my leg to keep them straight. Now, I managed to do something that the doctors found perplexing. I managed to wear out the double cast. I used to crawl around, using my hands and arms as feet and legs. This included crawling up a flight of stairs. I developed a pretty solid upper body, save for the flabby stomach. Other than that, my arms were pretty toned and strong.
It simply bewildered the doctors that I could actually crawl up the stairs. I was a kid, and I didn’t know what it was like to face something I couldn’t overcome. Deep down, I think that all kids have this strength.
I actually cried the first time I had to go without a cast. Hey, I had always had one, I couldn’t remember a time that I didn’t have one. Now, something really cool was going on that I really should touch on here. My surgeries were making me a little famous. At the age of four, I had already appeared in the National Enquirer, and the local newspapers, the Democrat and Chronicle, and Times-Union. This does not include being interviewed on local television. All of this attention, because many of the surgeries I was having were first of their kind. If I’m not mistaken, the bone graph surgery was video-taped and currently sits in the library of Johns Hopkins Medical School. During this time, I got to talk to Erik Estrada, Ron Carey, and Washington Redskins placekicker Mark Mosley. During the NFL season, Mark would call my house the Saturday before every game. Though deep down I was secretly a Tampa Bay Bucs fan, I rooted for the Redskins because of Mark, and harbored a hatred of them when they released him from the roster. I cheered the Browns when they signed him, and became a Broncos hater for life when his last chance at going to the Super Bowl was stopped by Denver. Although, I did cheer the Redskins when they played Denver, and the Redskins had long time Bucs QB Doug Williams at the helm.
Ron Carey kept sending us holiday cards for years. He also sent us an autographed mini poster of the entire Barney Miller Cast. He even sent us sweat shirts of his last TV show, 1989’s Have Faith. Ron passed away a few years ago.
In October of 1988, I had surgery where they closed the growth plate in my Right leg, in hopes that the legs would even themselves out. Alas, that never happened. However, in December of 1992, I had the surgery that would change my life forever.
It was perhaps the most risky surgery choice. The idea that my left leg would be broken, placed in a lizeroth cage, and I would have to turn four screws four times a day to stretch out the bone. What made it such a great risk was that I had no guarantee that my left leg would heal if broken, and I stood a chance of losing the leg. It was a risk I had to take, because I’d grown tired of having to buy shoes, and then having a lift placed on it. I wanted normal shoes for once.
December 6th, 1992, I had the surgery. I was out of school for almost a year and a half. I missed out on the majority of my sophomore and Junior years. It was a struggle getting used to the cage being on my leg, and trying to get around could be a pain. It was a few weeks before I could even manage climbing the stairs. I manager to do my homework, work the trading card store my parents owned, and live a somewhat normal life. I still wonder to this day how I managed to get around with the bulky thing on my leg. As for turning the screws, I didn’t feel the pain. I’m sure the notion of “Stretching bone” sounds painful, but it didn’t bother me at all. December 8th, 1993, I had the cage removed. I managed to act in a play (Life with Father, I played Clarence) continue to write for the school paper, and get myself back into the routine of academics. I did suffer a set break, breaking my leg in March of 1994. That didn’t stop me from going to the Senior prom, and even getting some dancing in, along with an impersonation of Beavis.
Now, were going to flash forward about 6 years. Life finds me as a commentator for NMW, a wrestling promotion based in Rochester, New York. I even managed to debut as a heel manager. For the record, the first ten years of my career, I was a heel. I’ve always felt comfortable playing a villain. After NMW ceased operation, I was a part of the local TV show Wrestlevision. The show highlighted independent feds from across the US, Canada, and even Japan. It was fun for the first year, until a producer who used the show to lampoon professional wrestling took over, and after that, doing the show became as enjoyable as walking across a bridge made entirely of cactuses. Thankfully, I went from that quickly sinking ship to joining up with Paul McClemmons and POD productions. Finally, I was working with someone who shared my vision of keeping true to old school values, yet still presenting professional wrestling in a modern way. Over these many years, I’ve gotten to call matches of legends like Jimmy “Super Fly” Snuka, Jeff Jarrett, Raven, Marty Jannetty, and many others. I also am a part of a locally produced internet radio station on Veetle. I host my own show, called the Metal Mountain, and I co-host Rock N’ Roll Sports, a show that I had done during my college days at MCC. I keep pretty busy these days. I also have a hobby of writing short stories. I hope the finally try and get them published.
Now I’m sure some of you are asking the question. Have I ever thought of what would it be like to not have had Neurofibromatosis? You know what, I can honestly answer that by saying, not really. Granted, there have been those fleeting moments in which I have asked that question of myself. Then I think about those who followed after me.
A few years before I was born, a young boy in Oregon was born with the same illness. His parents opted for choice B, which involved cutting off the leg. My parents chose their option, A, for me to keep my leg. All of those surgeries I mentioned before, all were one of a kind. They had never been done before, I was the first. Before I went through all of that, doctors would actually push the idea of amputation. Now, there are kids today having the surgeries that I’ve endured. They don’t have to worry about amputation being the only option. Yeah, I think that’s a great trade-off for not being able to play little league, or being the pee wee league quarterback (though growing up, I’d realize that I’d love to have been a bruising linebacker).
Looking back, I’d endure the same life, I wouldn’t trade it for anything. And I look at it as simple as this. Because of the fact that no one else is going to have to endure the notion of the losing a limb, which is what made it all worth it. Did I get to grow up to be the baseball player, football player, or professional wrestler that I wanted to be as a kid? Nope, I grew up something much greater than that. I grew up to blaze a medical trail. I can’t put it any better.
Now, I do want to clear up a little final bit of business. As I stated to start off this blog, I’m really not one to open myself on the net like this. I have to admit that I felt a little inspired. And for that I would like to thank April Hunter, who wrote a blog this past week, and shared an amazing story from her childhood. And as I sit here, writing these words, I realize and appreciate the emotional strength it takes to write this. And I hope that everyone enjoyed this little walk in my world.
Thank you.